• Save the Date!

    2nd IPIG Conference May 15-16, 2025

    Paris, France

    More Information and Registration

  • ESH-EBMT-EHA-IPIG 3rd Translational Research Conference: Bone Marrow Failure and Leukemia Predisposition Syndromes

    IPIG Travel Grant Award Winners Camilla Freiri & Anjali Shah

  • IPIG Friday Satellite Symposium at ASH Annual Meeting & Exposition

    Congratulations to the IPIG/ASH Abstract Award Winners – Fernanda Gutierrez-Rodrigues, PhD and Hussein Awada, MD Thank you to all the faculty for sharing their expertise in PNH!

Our mission

The mission of the International PNH Interest Group is to advance optimal treatment and care of people living with paroxysmal nocturnal hemoglobinuria (PNH) and related conditions; to provide instruction, information, and training to health care providers; and to help further research on new and effective treatment options and improved patient access to approved therapies and treatments.

More about us

Collaboration announcement

The Max Foundation (Max) and the International PNH Interest Group (IPIG) Announce Collaboration to Improve Care and Management for People Living with Paroxysmal Nocturnal Hemoglobinuria (PNH) in Low-Resource Countries

More about the announcement

Save the date!

The International PNH Interest Group’s 2nd Scientific Conference will be held on May 15-16, 2025 in the beautiful city of Paris, France. This conference will bring together leading experts and professionals in the field of PNH to share the latest research, advancements, and insights.

Info and registration

Become a member

If you are a clinician, academic, and/or researcher involved or interested in PNH research or care and are not currently an IPIG member, please considering applying for membership. There are no joining fees or membership dues. Learn more on our membership page and/or email your membership questions to [email protected]

Apply for membership